New website launched by Headway UK to ease the burden for families dealing with sudden brain injury

 

 

We're delighted to share the link to a very special, innovative website, launched by Headway UK, called "I'm Calling About Chris".

 

The link to this is:  https://www.callingabout.org.uk/about/ and is designed to help people keep family and friends regularly updated on the condition of a loved one following a brain injury. 

 

 

The nature of brain injury means that loved ones are spending many exhausting hours at a hospital bedside while simultaneously trying to update those who care on news and progress. This can be a highly draining experience, both physically and emotionally. 

 

 

The website is very simple to use, enabling families to create an account for free, dedicated to their loved ones. Families can choose whether to make this private or accessible to all, and can choose whether to update with photos, videos, or simple texts. 

 

 

The site can be reached, and a page created, from a tablet or Smartphone, and friends/family members can post their support in response. 

 

Luke Griggs, Director of Communications at Headway UK, says:

 

"At Headway, we understand how difficult it can be to sit by the bedside of a loved one who is in critical care following a sudden acquired brain injury. For many families, the relief that their loved one has survived can quickly be replaced by uncertainty and fear about what the future may hold. Any remaining strength can then be sapped by making or receiving dozens of calls each evening from worried family and friends, each understandably eager for updates."

 

To read more about this website, please visit:

  https://www.headway.org.uk/news/national-news/2018/new-website-eases-the-burden-of-families-dealing-with-sudden-acute-brain-injury/?utm_source=Email+newsletter+subscribers&utm_campaign=f67429c6f3-Headway+News+Bitesize+September+2018&utm_medium=email&utm_term=0_53a38ea6e0-f67429c6f3-439443385

 

To visit the site itself and begin creating your own page, please visit:     https://www.callingabout.org.uk/about/

 

 

 

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Positive Blue Badge changes ahead for those with hidden disabilities

The Blue Badge scheme is currently being reviewed and plans are afoot to extend the Badge to those with less visible disabilities, such as brain injury.

 

The changes are described as the biggest being made in the scheme in almost 50 years and it's hoped that they will offer a lifeline to people with hidden disabilities who suffer from travel difficulties.

 

Changes will come into force on 30th August 2019. 

 

For full details, please visit  https://www.gov.uk/government/news/review-of-blue-badge-fraud-as-scheme-is-extended-to-those-with-hidden-disabilities

 

An excellent 'Way Ahead' conference

 

We thoroughly enjoyed attending this year's 'Way Ahead' conference in early July. It was the ideal opportunity to share viewpoints and see the diverse range of services provided for those managing ABI. We also got to meet MP for Rhondda, Chris Bryant, who has been working incredibly hard in parliament to improve aftercare and neuro paths for those with ABI and their loved ones. For more information, please visit 'Staff News'!

 

 

 

Fancy a challenge? Why not try the Northampton Half Marathon for HEN?

 

If you want to fulfill a personal challenge but find the idea of the London Marathon a bit too daunting, why not consider running the Northampton Half Marathon for Headway East Northants?

 

The Half Marathon will be held on Sunday 29th September. We've teamed up with 'Go Beyond Sport' who are managing the event - it's free to register and your only commitment is to raise a minimum of £100 for us.

 

For further details, and to register, please visit  http://gobeyondsport.co.uk/Northampton_Half_Marathon_2019_Run_for_Free